Katherine gave us a big scare last Saturday when she had what we (and two neurologists) think was a seizure. After a four day stay at the University of Kentucky Children’s Hospital and a two-day EEG video, she is now on seizure medication.
We are so happy to be home to celebrate Christmas. We made our annual Christmas cookies and ate them under the tree.
We are doing our best to make this Christmas as magical as possible for Katherine.
We do not have a P.O. Box established to receive cards or gifts.
We have asked that you please refrain from sending presents. We are trying to sell our home and I can assure you that KB has more than enough. If you want to help our family, we ask that you please make a donation to www.gofundme.com/hopeforkatherinebelle to help pay for medical expenses, testing, etc.
I have a bag of duplicate toys she’s received – yes, a bag a them! – ready to take to a toy drive.
If this isn’t something you want to do, then please donate a toy to a local charity, or donate to Rare Disease United Foundation, or Global Genes Project. Or share our story and help us raise awareness.
Also, please consider sending a card to sweet Addie. She has an unknown rare disease and loves Christmas cards.
Finally, if we could we would send each of you a Christmas card. Instead, please accept this card as a token of our love and appreciation for each of you. Thank you for following our story, for helping us raise awareness for rare disease, and for listening to and sharing our fears, our triumphs, our sorrows.
We are so grateful for the many generous donations you have made to help us fund this diagnostic odyssey. Mostly, we appreciate your prayers, kind hearts, and for loving a child you’ve never met, but want to help and pray for on a daily basis. You give us more comfort and hope than you may realize.
We truly believe that no matter what may come, we can all rejoice in knowing the world is a better place because of children like Katherine Belle.
From the bottom of our hearts, we wish each of you a very Merry Christmas!