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David

A Father’s Plea

January 22, 2018 kbelle329 3 Comments

Tax-deductible donations at #Hope4KB Research Fund

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Children's Hospital of Philadelphia father Hope for Katherine Belle Hope4kb Mito Mitochondrial Disease NUBPL Valentine

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Mitochondrial Disease Explained for Non-Scientists

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Rare Disease Day 2019 February 28, 2019
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Fate’s Waiting Room February 25, 2019
David Faughn 2019 Eagle Rare Life Award Nominee November 5, 2018
Today is Kentucky Gives Day 2018 May 22, 2018
A Father’s Plea January 22, 2018
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#GivingTuesday November 28, 2017
Mitochondrial Disease Awareness Week 2017 September 1, 2017
The Liebster Award August 25, 2017
Katherine Belle Walking, Age 6 August 24, 2017
2017 Bi-Annual Report July 31, 2017
Kentucky Gives Day 2017: Support NUBPL Foundation April 17, 2017
Two NUBPL Families Meet For First Time, 2,000 miles apart March 21, 2017
1st NUBPL Foundation Fundraiser March 21, 2017
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2016: A Year in Review December 22, 2016
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Tips for Successful Legislative Advocacy August 23, 2016
Five June 28, 2016
Next Stop: Kindergarten May 19, 2016
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3 Things I Want To Tell the Mom Receiving A Rare Diagnosis April 1, 2016
5 Tips for Appealing Genetic Testing March 3, 2016
To the Parents Just Receiving a Rare Diagnosis March 2, 2016
Team Rare Disease February 26, 2016
EPI-743 Trial Update January 5, 2016
The Christmas I Thought Was My Child’s Last August 20, 2015
Mitochondrial Disease Explained for Non-Scientists August 14, 2015
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What is EPI-743? August 10, 2015
Four July 9, 2015
Summer Update July 3, 2015
Rare Disease: A Photographic Journal to Diagnosis May 12, 2015
What is NUBPL? May 12, 2015
NUBPL – Mitochondrial Complex 1 May 7, 2015
NUBPL Gene – Mito Complex 1 (Diagnosed) March 31, 2015
Her Knight Father-Daughter Dance February 9, 2015
Be Mine January 31, 2015
#Hope4KB January 28, 2015
A Magical Vacation January 25, 2015
A Year in Review (2014) January 6, 2015
Merry Christmas December 12, 2014
How am I doing? (Glenda) December 2, 2014
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Keep Churning November 15, 2014
Robin Williams and Rare Disease November 12, 2014
Connected To The Past November 7, 2014
Fall Updates October 30, 2014
A Letter to Myself – One Year Ago Today August 30, 2014
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Now What? August 13, 2014
How Social Media Impacts Scientific Research July 19, 2014
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Faith. Hope. Love. January 27, 2014

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