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David

A Father’s Plea

January 22, 2018 kbelle329 3 Comments

Tax-deductible donations at #Hope4KB Research Fund

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Children's Hospital of Philadelphia father Hope for Katherine Belle Hope4kb Mito Mitochondrial Disease NUBPL Valentine

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Awareness for NUBPL

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Exhale
Fate's Waiting Room
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2017 Bi-Annual Report July 31, 2017
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Mitochondrial Disease Awareness Week (September 18-24) September 21, 2016
Tips for Successful Legislative Advocacy August 23, 2016
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To the Parents Just Receiving a Rare Diagnosis March 2, 2016
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EPI-743 Trial Update January 5, 2016
The Christmas I Thought Was My Child’s Last August 20, 2015
Mitochondrial Disease Explained for Non-Scientists August 14, 2015
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What is EPI-743? August 10, 2015
Four July 9, 2015
Summer Update July 3, 2015
Rare Disease: A Photographic Journal to Diagnosis May 12, 2015
What is NUBPL? May 12, 2015
NUBPL – Mitochondrial Complex 1 May 7, 2015
NUBPL Gene – Mito Complex 1 (Diagnosed) March 31, 2015
Her Knight Father-Daughter Dance February 9, 2015
Be Mine January 31, 2015
#Hope4KB January 28, 2015
A Magical Vacation January 25, 2015
A Year in Review (2014) January 6, 2015
Merry Christmas December 12, 2014
How am I doing? (Glenda) December 2, 2014
How am I doing? November 20, 2014
Keep Churning November 15, 2014
Robin Williams and Rare Disease November 12, 2014
Connected To The Past November 7, 2014
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A Letter to Myself – One Year Ago Today August 30, 2014
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Now What? August 13, 2014
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Faith. Hope. Love. January 27, 2014

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