Thanks For Your Support!

A very special thank you to the many generous family members, friends and strangers who have donated to our daughter’s gofundme account so we can find a diagnosis.

On October 6, 2014, we traveled to UNC – Chapel Hill to participate in our first research study.  We will go back in nine months for results.  In the meantime, we are in the process of finalizing another Whole Exome Sequencing (WES) through our insurance company and could receive those results as soon as six months.

We are forever grateful to each of you for your assistance and support through this medical journey.

Donations may be made at: http://www.gofundme/

Screen shot 2014-10-14 at 5.32.38 PM
Just a photo and not a link. Please use link above.

One thought on “Thanks For Your Support!”

  1. Hello. My name is Erin and I must admit that I haven’t stopped sobbing after reading your story and watching the video above.

    My little boy Abram who just turned 2 on 7/9 has shared a similar journey with a handful of little diagnoses but no real answer as to what is causing them all.

    Like you, I know more about his conditions than his specialists. Like you, I just want to know what to expect to make life as comfortable and happy for my little guy. Heck, our kids even have the same walker!

    Anyhow, I just wanted you to know your story touched me. That you are not alone. That even in the darkness your light has shown through. I hope that the full dna sequencing helps.

    With much love, we wish you the best of luck.

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